Skip to Main Content (Press Enter) Toggle side nav
Not Fade Away by Rebecca A. Alexander and Sascha Alper
Add Not Fade Away to bookshelf
Add to Bookshelf
Not Fade Away by Rebecca A. Alexander and Sascha Alper
Paperback $17.00
Sep 15, 2015 | ISBN 9781592409419

Buy from Other Retailers:

See All Formats (1) +
  • Sep 15, 2015 | ISBN 9781592409419

    Buy from Other Retailers:

  • Sep 11, 2014 | ISBN 9780698162167

    Buy from Other Retailers:

Product Details


“A remarkable story of resilience and heart, Not Fade Away follows Rebecca Alexander as she must navigate the world cursed with a rare genetic disorder that will one day rob her of both sight and hearing. Bereft of self-pity, funny, and bursting with honesty, Not Fade Away will get its hooks in you. I promise that by the end of her story, you will fall just as in love with Rebecca as I have.”
—Susannah Cahalan, New York Times bestselling author of Brain on Fire
“Her eyes and ears may be declining, but Rebecca’s sense of self is sharply focused and profoundly tuned. By sharing her life, she has enriched mine and will yours, too. I love this woman.”
—Meredith Vieira
“There is a saying that goes—you never know how strong you are until being strong is the only choice you have. Rebecca Alexander’s indomitable spirit spills out on to the pages of this incredible memoir. She will lift you up . . . the way she did for me.”
—Hoda Kotb, New York Times bestselling author of Ten Years Later and Hoda, and Emmy-award-winning anchor of the Today show

“An honest and eloquent look at life . . . Alexander emphasized the importance of embracing the here and now, of being present and grateful for the gift of life, in whatever shape it might take.”
Kirkus Reviews

“Profoundly inspiring . . . [Rebecca’s] ability to find so much to be grateful for after being dealt such an unfair hand challenges those of us with far fewer hardships to treat each day as a gift.”
Publishers Weekly

“Wise and realistic instruction in intentional living, grace, and overcoming obstacles great and small.”

Author Essay

Dear Reader,

When Rebecca Alexander was 12 she received her first diagnosis and was told that she was slowing losing her sight and would eventually be blind. In college she learned that she suffered from Usher Syndrome III, a rare disorder, which meant she was not only losing her sight but her hearing as well. She would be completely blind and deaf by the time she was 30. Not Fade Away interweaves the story of her early and present life, and takes us through her diagnosis and the physical and emotional process of losing both her sight and hearing. Despite the frightening diagnosis and the constant adjusting to her ever changing needs this is an optimistic and inspiring story. She is soaking up as much as she can before its gone, spending time looking at the faces of her friends and family, listening to their voices and laughter, listening to music or the sound of the rain or the sight of the stars.

Now 34 years old she still has some sight and minimal hearing and has to constantly adjust to her changing world. She has learned sign language and is now learning tactile sign and will eventually learn Braille. She finally got over her discomfort in using a cane after falling down a hole on the Manhattan sidewalk. She had to give up one of her favorite things –driving. She was recently the recipient of a new type of Cochlear implant or “bionic ear” and while it means she can hear what is being said the sounds have taken away the personality of those around her, making them all sound robotic.

She is like a modern day Helen Keller with the difference being that Helen never knew what it was like to see and hear and Rebecca has watched these things gradually disappear. But she is a powerhouse who doesn’t let her disabilities define her; hugely accomplished she is a practicing psychotherapist in New York, received a double masters from Columbia, teaches spin classes, has completed marathons and hiked the Incan Trail.

This is the ultimate inspirational memoir about overcoming adversity. While her story is a singular one, it contains universal truths and experiences that will resonate deeply with a variety of people. She wants to inspire others to treasure what they have and to stop making excuses and embrace life for what it is now. When you see all of the things that Rebecca has gone through in her 34 years (going deaf and blind but also her parent’s divorce, her twin brother suffering from debilitating bi-polar disorder, an eating disorder, and a horrible accident that shattered most of her body, as well as dealing with dating with her disabilities, and navigating the streets of New York every day) readers will recognize what they DO have, be grateful and use it to the best of their abilities.


Lauren Marino

VP, Editorial Director

Gotham Books

Looking for More Great Reads?
21 Books You’ve Been Meaning to Read
Be the first to know!
And go from well-read to best read with book recs, deals and more in your inbox every week.
And go from well-read to best read with book recs, deals and more in your inbox every week.
By clicking SIGN UP, I acknowledge that I have read and agree to Penguin Random House’s Privacy Policy and Terms of Use.
Something awesome is on its way.
Back to Top